BLASCK Publishing

New Directions

A super quick update today - After spending May 2017 to December 2018 doing the Graduate Diploma of Psychology at Monash University, I’m now half-way through the 4th year (Bachelor of Psychological Sciences (Honours )) at La Trobe University where I’m doing a research thesis on language development in young children with emergent autism, supervised by the fabulous Drs Kristelle Hudry and Jodie Smith. I’m so incredibly fortunate to be studying with some of Australia’s leading autism researchers at Australia’s first autism research centre, the Olga Tennison Autism Research Centre (OTARC), and I’ve made some wonderful new study buddies along the way. There’s something about people drawn to psychology careers a little later in life …

I’m also looking forward to some presentations I’ve been asked to give in September, including one teaching into the 3rd year psychology subject dedicated to ASD. Did you know La Trobe is the only university in Australia which offers an entire unit on ASD?

Talks and Wellbeing

Well it's certainly been a crazy few weeks around here. April's Autism Awareness month saw a flurry of requests for talks, presentations, discussions and blog posts. In the last 3 weeks alone I've given presentations at Aspergers Victoria, the Melbourne Autism Expo, the Aspect Autism in Education Conference, and at John Monash Science School. I hope you managed to get along to an event or expo, or just read some of the many new articles online, to increase your own knowledge about living well on the spectrum.

One study I've had the good fortune to be involved with recently is the Australian Wellbeing Project.  While quality of life and happiness (or subjective wellbeing) have been studied for over 30 years, it is only recently that individuals with autism have been asked about their happiness levels across seven domains: standard of living, health, achieving in life, relationships, safety, community, and future security. There is some data showing autistic adults are less happy than non-autistics, by about 10 points on the Personal Wellbeing Index. 

Now it is time to give teenagers on the spectrum their chance to inform policy development. If you are the parent of an adolescent aged 13+, or an adult aged 18+, please give 15 minutes of your time to participate in this important research. The team at Deakin University require a few hundred participants, both with and without autism, to complete the online survey, and are offering a prize draw for completed surveys.  Parents will be sent a link for adolescents to complete their own 5 minute survey.

Click on the link here to read more about the project and to start the survey http://www.wellbeingindex.net.au/

After such a busy month, I'm looking forward to increasing my own wellbeing with a little more time for researching, writing, editing and catching up on sleep!  

 

Medicare Safety Net Explained

Last night I presented my two hour 'Finding Fee Relief and Funding' talk to families for Aspergers Victoria, at the Nerve Centre in Blackburn, Victoria. It was a great night, with a very engaged and inquisitive audience, and as always, lots of communal sharing of tips, ideas and strategies. 

Overall I covered 18 different ways to access funding and rebates for individuals and families with Aspergers and autism.  As the Medicare Safety Net generated a lot of discussion I thought I'd go over it again here. While it's easy for families to register and obtain maximum rebates for their out-of-pocket medical and allied health expenses, this is one of those things that some families don't know about, which means they could be missing out on extra benefits from the Government.

 

How does it work?

The Medicare Safety Net provides financial assistance to individuals and families who are experiencing high costs for out-of-hospital medical services. If those services attract a Medicare rebate, they are counted towards your threshold. Before you reach the threshold, your Medicare benefit will be 85% of the scheduled fee, regardless of what the service provider actually charged you. After you reach the threshold, your Medicare benefit will be 80% of your out-of-pocket expenses. This is for all eligible future services, for the whole family, for the rest of the calendar year.

While individuals are automatically registered for Safety Net, couples and families MUST register with Medicare to have their combined expenses count towards the family safety net threshold. Even if you are all on the one Medicare card, you still need to register. You only need to do this once. Registering is simple - you just download, complete and post the form from the Medicare website, or call them on 132 011, or drop into a Medicare Service Centre (if you can find one!)

 

What are the thresholds?

For 2016 they are:

Original $447.40 - All Medicare cardholders will receive 100% of the scheduled fee for out-of-hospital services, after their gap amount (difference between Medicare benefit and scheduled fee) reaches this level.

Extended Concessional $647.90 - Concession card holders (eg Health Care Card) and families receiving Family Tax Benefit Part A will receive back 80% of their out-of-pocket costs on out-of-hospital services, once their out-of-pocket costs (difference between Medicare rebate and what you actually paid) reach this level.

Extended General $2030 - All Medicare cardholders, and registered families will receive back 80% of their out-of-pocket costs on out-of-hospital services, once their out-of-pocket costs (difference between Medicare rebate and what you actually paid) reach this level.

 

 

Why should I bother?

Because it can make quite a difference to your overall costs! 

Take a trip to the psychologist, for example.  Many Aspies experience times of anxiety or depression, and may consult with a psychologist for help with individualised strategies to overcome this. A common fee for a 50 minute session with a clinical psychologist is $200.

If you visit your GP first, to get a Mental Health Care Plan, you can get Medicare rebates for the cost of these services. That 50 minute session will now cost you much less - the Medicare rebate is 85% of the scheduled fee, which at $99.75 is less than half the actual rate. So your rebate of $84.80 leaves you $115.20 out-of-pocket.

As an individual, your rebate for this service will remain the same until you reach the original threshold of $447.40, at which point your rebate will increase to 100% of the scheduled fee. You will now be out-of-pocket $100.25 ($200-$99.75).

Now, if you (or your child) has a health care or other concession card, once you reach the Extended Concessional threshold of $647.90, your rebate will increase to 80% of your out-of-pocket cost. So now the $200 psychology session will cost you $40 ($200-$160).

If you don't register your family, you won't start receiving the higher 80% rebates until you each individually spend $2030 on out-of-pocket costs, or trigger the Extended Concessional threshold by having a concession card, or start receiving Family Tax Benefit Part A. 

Wouldn't you rather save $60 per session? Just for making a phone call?

Another thing - if your child has their own Health Care Card, say because you've applied for the Carer's Allowance after receiving their Autism Spectrum diagnosis, their expenses will count towards their own Extended Concessional Threshold, AND your family safety net threshold at the same time. 

 

What happens when my child turns 18?

Good question. The even better answer is nothing, at least while they are a full time student. Your child will stay registered with your family until they turn 25. At this point they will automatically drop off the family registration and start counting towards their own individual safety net. If your child does leave full time study, you must notify Medicare.

Even if they get their own Medicare card (which you can do once they turn 15), they will still be registered as part of your family until you notify Medicare they've stopped studying, or they turn 25, which ever comes first.

To help your teenager or young adult obtain their own Medicare card, click here.

 

Take Home Tips

  1. Register your family for Safety Net ASAP
  2. Lodge Medicare claims for all expenses ASAP. In person, online, or via the Medicare Express Plus App
  3. Ask your GP about programs such as the Mental Health Care Plan or Chronic Disease Management Plan, to lower your medical and allied health costs - they may not realise you could do with some help!
  4. See Medicare Safety Net for more details, or to download the family registration form.

 

This is just one small snippet of information I can explain to your group if you book me for a Funding talk. Or you can get many more tips like this in my book The Hidden Diffability: Discovering Aspergers.

Please sign up for my Hidden Diffability Newsletter to keep up to date.

Good luck on your Aspergers Journey!

 

 

 

 

Melbourne Autism Expo - Celebrating Difference

I'm looking forward to presenting 'Successful Strategies for Secondary School' at the Melbourne Autism Expo on Saturday 30th April 2016 10am-5pm at the Karralyka Centre, Ringwood East. For only $15 for adults, $10 concession and free for kids under 16, families and individuals can access the latest useful and practical information, products and services about living on the Autism Spectrum. My presentation will be at 3:15pm, but there's plenty of other speakers to see before hand. Full details can be found at the Melbourne Autism Expo website. Please come and say hi.

Hope to see you there!

What Predicts Success for our kids?

What predicts success? A 2015 American study by the National Center for Learning Disorders found that having an Individual Education Plan wasn’t the most important factor. More important was having

  • strong support from parents,
  • a strong connection to friends and community, and
  • a strong sense of self confidence.

1200 young adults (1-2 years after leaving school, both with and without diagnosed learning issues) were surveyed about their school experiences, results, hobbies, family structure, services received, and life satisfaction. The results showed students with learning and attention issues could be grouped into ‘Navigators’, ‘Copers’ and ‘Strugglers’. The Navigators had the most positive outcomes post secondary schooling. What set them apart was having a positive mindset, strong family support, self advocacy skills, mentor support, community connection, early intervention, positive messages and high expectations from others.

Parents can help their children become successful navigators by doing the following:

  • Talk regularly with your kids about differences and disability.
  • Share your own strengths and weaknesses to help your child identify theirs.
  • Help children define themselves by their strengths, not their difficulties.
  • Encourage them to be confident in their abilities, and persevere when challenged. 
  • Help them pursue their passions to boost self esteem and build community connections.
  • Work with the school to develop an IEP (ILP in Australia) and transition supports.
  • Include children in discussions about them.
  • Act early – seek evaluations and assessments as soon as you have concerns.
  • Tackle negative messages, teasing or low expectations from teachers and peers.
  • Educate yourself; be informed about service options and supports, build collaborative relationships with experts.
  • Connect with other parents and build your own support networks.

For more information on the study visit Student Voices: A Study of Young Adults With Learning and Attention Issues

Welcome to our new website

In an effort to better reflect what we do these days, we've built this new website, which incorporates

  • the book series, The Hidden Diffability: Discovering Aspergers, and The Hidden Diffability: Aspergers At School,
  • public speaking, and
  • editing, proofreading and self publishing services via Blasck Publishing.  

We've also added a sign up form for my new regular newsletter, where you can find out about pre-order discounts for Aspergers at School, upcoming talks and appearances, and latest research in the Aspergers and autism field.

Enormous thanks to my clever husband Brett, for his design and technical expertise.

What comes first? Sensory Sensitivity, Anxiety, or Fear of the Unknown

A just published UK study has found that sensory sensitivities and anxiety in kids on the autism spectrum is largely driven by a fear of the unknown. Supporting our spectrum kids to learn coping strategies for uncertainty could have great benefits in reducing anxiety and sensory sensitivities.

The University College London study tested the relationships between anxiety, sensory sensitivity and intolerance of uncertainty in 64 children with autism and 85 typically developing children aged 6-14 years, all with at least average intelligence.

They found that 84% of children with autism have high levels of anxiety, while 70% have sensory sensitivities. Children with more severe degrees of sensory sensitivity had higher levels of anxiety and intolerance of uncertainty. The researchers believe that discomfort with uncertainty triggers anxiety, which makes sensory experiences seem threatening. According to lead researcher Elizabeth Pellicano from UCL, “autistic children want to have control over their environment to make it more predictable.”

Pellicano’s study provides more evidence to support the theory that unpredictability worsens both anxiety and sensory sensitivities. A 2014 study by Pawan Sinha from MIT theorised that children with autism overlook important clues and are often taken by surprise when a situation unfolds. Thus they view the world as unpredictable and overwhelming.

Helping children analyse past experiences to better predict the future may alleviate their distress, more so than trying to modify their environment, or limiting their exposure to stressful situations.

My take home message - help your child practise predicting future events using past experiences, either theirs or your own. Make a game of predicting possible outcomes for upcoming situations. 'What do you think will happen next, given what happened last time we went to ...?' Praise their logic when they come up with suggestions. Place bets if you have to!  Have fun with it.

Click on the links below if you'd like to know more about these studies.

I'd love to know how you go with this. Leave a comment below.

REFERENCES:

1.     Neil L. et al. J. Autism Dev. Disord. (2016) Epub ahead of print. PubMed

2.     Sinha P. et al. PNAS 111, 15220–15225 (2014) PubMed